Most of you who read my stuff know I love to laugh and can find plenty to laugh about no matter the situation. Yep, tragedy is often close to comedy. But sometimes the mirth is better left untapped. This is one of those times. Sane self is in charge and typing this post and painfully aware Neurofibromatosis is not funny, and if you read this entire post, you will know why. (I did try to make this piece funny in the interest of a good cause, but I just couldn’t do it. Catch me on the next post.)
I understand Richard Armitage has created a doodle for the NF Network’s Doodle4NF campaign on eBay which runs during part of NF Awareness month (May 7-17?). Bidding is now up to $1,625 as of this posting:
There are also several others associated with Hannibal who have submitted drawings including Bryan Fuller. It makes me wonder if someone working on the show has a friend or relative with Neurofibromatosis. Maybe someone has stated as much, and I missed it. Whatever the case, NF is a heinous disease but not one you hear about everyday. In fact, I knew nothing about it until a couple of months ago when our neighbors of sixteen years were telling us about their son grappling with it.
They were foster parents to him when he was an infant and eventually adopted him knowing he had severe medical issues. His birth mother tried to abort him on her own, and the impact of that made him severely mentally handicapped. But his adoptive parents didn’t know about the NF2 until recently when their son started to manifest symptoms. It turns out he inherited NF2 from his biological family (which I understand is how someone comes to have it), and a few weeks ago he had surgery to alleviate pressure around a cranial nerve. The surgery was merely a stopgap. He is currently fourteen years old but will have ongoing issues with this condition for the rest of his life, and I cried as his parents sat in my living room describing what he will be facing in future. You can read more about NF2 at the NF Network’s site. At the moment, I think I’ll start crying again to explain.
And whether you bid on the drawings, please consider giving to this organization. According to my neighbors, it has been a wealth of information and much needed support.